Serious
Mental Illness Registry FAQ
How might the registry benefit me?
It is unlikely that you will receive any direct benefit as a result of your
participation in the Serious Mental Illness Research Registry. However, medical
record information contained within the Research Registry will be used for
research studies directed at improving our knowledge and treatment of psychosis
and this knowledge may benefit patients with psychosis in the future. If you
are a person who is interested in participating in research, consenting to have
your name placed in the registry allows researchers to contact you with
information about their studies. You have the final decision about
participating in any research study. As a registry participant, you can refuse
to participate in any research study for which you are approached.
How does the registry
benefit researchers?
First, the Research Registry allows researchers to review and study the medical
records of many individuals to answer questions about your disease and its
treatment. Second, it will help researchers identify and recruit individuals
who are eligible for participation in future research studies. For example,
physicians and other researchers associated with the UPMC Center for Psychosis
are also frequently involved in research studies directed at evaluating the
safety and effectiveness of drugs, devices, or procedures for the treatment of
psychosis. If you agree to participate in this Research Registry, your medical
record information will be reviewed by physicians and researchers to determine
if you might qualify for various future research studies. You will be contacted
by a member of a research team to inform you of specific opportunities to
participate in research studies. Again, you can refuse to participate in any
research study for which you are contacted.
Can I withdraw from the
registry?
You may withdraw, at any time, your consent for participation in the Serious
Mental Illness Research Registry, to include the additional collection of your
medical record information and its further use for the research purposes
described above. However, any research use of your medical record information
prior to the date that you formally withdraw your permission will not be
destroyed.
How do I become part of
the registry?
To get more information or to sign up for the registry, call 412-246-JOIN
(5646). A member of the Center for Psychosis will be happy to assist you.
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