Welcome to the ANBN.ORG website. We are committed to protecting the privacy , accuracy, and reliability of users of this website. This policy, which applies to the ANBN.ORG website, explains how we achieve that goal and gives you details of our privacy practices, including (a) what information we collect about you when you use the site; (b) how that information will be used and disclosed, and (c) how we will protect that information from unauthorized access.

Please read this privacy policy carefully. By using this site, you signify your agreement to the terms of our privacy policy. If you do not agree with these terms, please do not disclose any personal information through this site. If we decide to change the privacy policy for this site, we will post those changes here so that you will always know what information we gather, how we might use that information, and whether we will disclose it to anyone.

Questions regarding this privacy policy may be directed to privacy@anbn.org or in writing to us at EDResearch, 3811, O’Hara Street, Room E-721, Pittsburgh, Pennsylvania 15213-2593, Attention Christine Pollice.

You do not need to provide any information that identifies you ("personal information") to view the information provided at this site. In general, you can visit the site without revealing your identity or any personal information.

However, if you complete the Contact Form (located in the "Study Participation" section of this website) for the purpose of possibly participating in the genetic studies described on this website, you will be providing us with personal information such as your name, e-mail and physical address, home and work telephone numbers and other personal information. If you do not wish us to have such personal information then you should not complete the Contact Form. Please note that you will be asked to provide the same personal information if you call our toll free number instead of completing the online contact form. In addition, we will collect personal information, including in particular, your email address, if you send an email to any of the email addresses listed in this site.

Our primary purpose in collecting and processing personal information is to provide you with the information you have requested regarding the genetic studies that we are conducting on anorexia nervosa and the possibility of participating in such studies. We will not use your personal information for marketing purposes.

Depending on your location, we will direct your contact information to a participating research site to provide you with the information you have requested regarding how you can participate in the genetic studies. If you express an interest in participating in the genetic studies, you (or your parent or legal guardian, if you are under the age of 18) will be required to sign a written consent form that describes the study and your participation in it prior to being permitted to participate in the study. If you decide not to participate in the study or if you (or your parent or legal guardian) refuse to give your (or their) written consent, or if it is determined that you are not eligible for participation in the studies, personal information collected from you shall not be retained and shall be deleted from our records in the normal course.

We take very seriously our responsibility to keep your personal information private. Accordingly, we do not rent or sell any of your personal information to third parties.

At the specific request of users who volunteer for research opportunities, we may share the personal information of those volunteers with participating doctors, researchers, institutions, clinics, and laboratories administering the research programs. We will ask that all doctors, researchers, institutions, clinics, and laboratories with whom we share any personal information to hold such personal information in strict confidence. We also will ask these doctors, researchers, institutions, clinics, and laboratories not to disclose any personal information collected from our users to any third parties and not to use that personal information for any reasons other than the use for which the information was gathered. Please note that these doctors, researchers, institutions, clinics, and laboratories are not employed by Price Foundation Limited, therefore, the Price Foundation Limited cannot guarantee their full compliance with all of our policies.

We also may be required to disclose personal information by law or legal process, to protect and defend our rights or property, or to protect the rights or personal safety of users of our website. Moreover, we must reserve the right to contact appropriate authorities when activities that are illegal or violate our policies are taking place on our website.Except under the limited circumstances described above, we do not disclose your personal information to unaffiliated third parties.

We take reasonable measures to protect the privacy, accuracy, and reliability of any information you choose to provide and to protect such information from loss, misuse, unauthorized access, disclosure, alteration, and destruction. We also safeguard your personal information by limiting the number of employees and agents who may access such information, by permitting access only for business purposes.

Please note that, while we strive to protect your personal information, we cannot ensure the security of any information you choose to transmit through the use of this site and in particular, through the Contact Form. We are not responsible for any breach of security, or for any actions of any third parties that inadvertently receive your personal information.

If you have submitted personal information through this site and you would like access to that information, please send an email to privacy@anbn.org. We will use reasonable efforts to supply you with this information and correct or delete any factual inaccuracies that you identify.

In some cases, we may collect information about you that is not personally identifiable, as described below.

An Internet Protocol (IP) address is a number automatically assigned to your computer whenever you access the Internet. This number does not identify your name, e-mail address or other personal information. If you request pages from this site, our servers enter your IP address into a log. To maintain user anonymity, we do not associate IP addresses with records containing personal information. We store IP addresses for a period of time to help us to identify anyone who refuses to comply with our in-house rules or terms of service, and to identify visitors who threaten our service, site, customers or others. We also use our log of IP addresses to gain aggregate information on how our visitors are using this site and to measure site traffic for internal purposes. This aggregate data helps us to understand how people are using this site and helps us improve your experience with this site.

Some websites automatically gather certain non-personal information about the usage of their sites through the use of "cookies." Cookies are small text files that recognize repeat visitors, facilitate ongoing access to some sites, allow sites to understand how and when pages are visited and by how many people, and maintain identities during user sessions in chat rooms. We currently do not use cookies. We do not use software that recognizes the cookies placed on your computer by other sites. We do not track your movements to other sites, we do not engage in profiling users, and we do not have agreements with third-party advertisers or others who use cookies to create user profiles. We may decide at some point in the future to use cookies to help us understand how and when pages on this site are visited and by how many people; however, at this time, we do not use cookies. If we decide to use cookies in this way, we will collect this non-personal data only on an aggregate basis and use it for internal purposes only.

You can choose whether to accept cookies by changing the settings of your browser. For example, you can reset your browser to refuse all cookies, or allow your browser to show you when a cookie is being sent. If you choose not to accept these cookies, please note that your experience within this website in the future if we decide to use cookies and at other websites may be diminished and some features may not work as intended.

We may provide links to various websites that we do not control. When you click on one of these links, you will be transferred out of this site and connected to the website of the organization or company that you selected. Even if an affiliation exists between this website and a third-party website, we exercise no control over such linked sites. Each of these linked sites maintains its own independent privacy and data collection policies and procedures. If you visit a website that is linked to this site, you should consult that site's privacy policy before providing any personal information.

It is our policy not to collect personal information or any other identifying data from children under 18 years of age, without first obtaining verifiable consent from a parent or legal guardian. Requests for parental consent will explain how we collect, use, and disclose children’s personal information, and will include an opportunity for parents to prevent use and disclosure of their children’s information. Should a child whom we know to be under 18 send personal information to us, we will use that information only to respond directly to that child to inform him or her that we must have parental consent before receiving his or her personal information.

As eating disorders affect young people and children, certain areas of our website focus on eating disorders among young people and children. These areas of our site concern issues that are important to parents, young people, children and health-care professionals, but are not directed toward children under the age of 18.

(Last Updated: June 5, 2001)