Presentations Websites Parent Recommended Websites  Publications In The News

Websites

  1. Advisory Board on Autism and Related Disorders (ABOARD) - ABOARD's mission is to maximize the potential and possibilities of Western Pennsylvania children, adolescents and adults with autism in social, education and vocational environments by building awareness, information dissemination, education & training, family support and collaboration & partnerships.

  2. Asperger Syndrome Education Network (ASPEN) - ASPEN® is a non-profit organization in New Jersey. They provide families and individuals whose lives are affected by Autism Spectrum Disorders (Asperger Syndrome, Pervasive Developmental Disorder-NOS, High Functioning Autism), and Nonverbal Learning Disabilities: with Education about the issues surrounding the disorders, support in knowing that they are not alone, and in helping individuals with ASD's and NLD achieve their maximum potential and advocacy in areas of appropriate educational programs, medical research funding, adult issues and increased public awareness and understanding.

  3. Autism Speaks (AS) and Cure Autism Now (CAN) - Autism Speaks’ goal is to change the future for all who struggle with autism spectrum disorders. They fund research into the causes, prevention, treatments, and cure for autism and raise public awareness about autism.  Autism Speaks offers a 100-day kit, which is created specifically for newly diagnosed families, to make the best possible use of the 100 days following the diagnosis of autism. The kit contains information and advice collected from trusted and respected experts on autism as well as from parents of children with autism.  For more information, click here Autism Speaks 100 Day Kit.  

  4. Autism Research at the NICHD - The NICHD, part of the National Institutes of Health (NIH) within the U.S. Department of Health and Human Services, is one of several Institutes doing research into various aspects of autism, including its causes, prevalence, and treatments. The goal of this site is to provide easy access to the most current information about NICHD research projects, publications, news releases, and other activities related to autism and similar disorders.

  5. Autism Society of America (ASA) - has resources for the autism community in education, advocacy, services, research and support. ASA accomplishes its ongoing mission through close collaboration with a successful network of chapters, members, supporters and organizations.

  6. Demystifying Autism From the Inside Out - William Stillman is an adult with Asperger's Syndrome who has written a number of books and has given numerous presentations on autism. His message of reverence and respect has touched thousands nationally through his acclaimed autism workshops and private consultations.

  7. Geneva Centre For Autism - Geneva Centre for Autism empowers individuals with autism spectrum disorders, and their families, to fully participate in their communities.

  8. The Gift of Hope Autism Tissue Program - is an organization determined to understand autism spectrum disorders by providing approved scientists access to the most fundamental, rare, precious and most necessary of resources; human brain tissue. Our national outreach program makes families aware of the need for this Gift of Hope.

  9. The Help Autism Now Society (HANS) - was founded in 2002 by a physician and nurse, Paul and Linda Lee, parents of a child severely affected with autism from birth. Despite over 40 years of combined medical experience they discovered that they had not received any training in autism. As a result they decided to develop a program that would greatly facilitate the diagnosis and treatment of autism, so that families would not suffer needlessly as a result of delayed diagnosis. For parents, HANS has developed television-advertising spots and these started airing in September 2006 throughout the Northwest. Concurrently, all the pediatricians, family practitioners and child psychiatrists, almost 2000 physicians throughout Oregon, will be provided with a package of materials that HANS has created.  Over 20,000 pediatricians West of the Mississippi received the package in December 2007. Click for HANS Final Calendar 2008

  10. The Interdisciplinary Council on Development and Learning Disorders (ICDL)  - founded by Stanley Greenspan and Serena Wieder, the Interdisciplinary Council on Developmental and Learning Disorders has been a pioneer in its work to advance the identification, prevention, and treatment of developmental and learning disorders. Through its research, training and publications, ICDL has created a cadre of world-class professionals across multiple areas of expertise who are extending the reach of the DIR®/Floortime Model.

  11. John Merck program - specializes in the evaluation and treatment of children, adolescents, and adults with autism and other pervasive developmental disorders. The Merck Program also provides services for children and adults with a multitude of disabilities such as blindness, deafness, cerebral palsy, and epilepsy.

  12. Milestone Video- a video production boutique.  "Autism Every Day" is a short film produced for the Autism Speaks organization. Its world premiere was at the 2007 Sundance Film Festival on January 21 and 22 in Park City, UT and January 27 in Salt Lake City.

  13. National Fragile X Foundation and Guide to Understanding Genetic Conditions-websites can help individuals understand the link between Fragile X Syndrome and Autism.  Fragile X Syndrome is a family of genetic conditions that can impact individuals in various ways.  Fragile X Syndrome is the most common "known" cause of autism or autistic-like behaviors.

  14. Online Asperger Syndrome Information and Support (OASIS) - a group of parents who have children diagnosed with Asperger Syndrome (AS). This site is for families of children diagnosed with AS and related disorders, educators who teach children with AS, professionals working with individuals diagnosed with AS and individuals with AS who are seeking support, so they have access to information.

  15. The Eunice Kennedy Shriver Center - dedicated to improving the lives of individuals with developmental disabilities and their families.  The Shriver Center promotes the understanding of neurological, cognitive and behavioral development associated with developmental disabilities, with an emphasis on mental retardation. To accomplish this mission, the Shriver Center conducts basic and applied research to determine the biological and environmental factors that influence typical and atypical development, and provides training and service programs that directly benefit people with developmental disabilities and their families.

  16. Treatment and Education of Autistic and related Communication Handicapped Children (TEACCH) - mission is: to enable individuals with autism to function as meaningfully and as independently as possible in the community; to provide exemplary services throughout North Carolina to individuals with autism and their families and those who serve and support them; As a member of the university community, to generate knowledge; to integrate clinical services with relevant theory and research; and to disseminate information about theory, practice, and research on autism through training and publications locally, nationally and internationally.

  17. University of Pennsylvania Autism Resource Guide-website provides useful information for individuals with autism and their families.  It includes information on Pennsylvania support and advocacy groups, research projects and how to get involved, guides for parents who suspect their child has autism and available age-specific services for individuals with autism.

 

 
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© 2006 CeFAR at the University of Pittsburgh • Site last updated November, 2008